Stories – Page 3 – Sepsis Australia

Sarah shares Kathryne’s story and her devastating loss in the hope it will raise awareness of sepsis and help other families facing this terrible burden.

On March 7, 2020 my mum Kathryne, called me saying she felt strange, she sounded confused and disoriented on the phone, she suspected she was having a heart attack, but she wasn’t sure, the days leading up to this she was very tired, and had flu symptoms. She had some sores on her arms which I think might have been the cause of infection leading to sepsis, we did not think to connect that to how she was feeling…….I had never heard of sepsis.

Her doctor never gave her antibiotics for the sores, which my sister believes might have helped the situation. I was at work in Sydney on a night shift & called an ambulance for my Mum, who lived in Newcastle, where my sister also lives. At first she went to a small local hospital, my sister rushing to be with her. I last spoke to my Mum about 6pm, she said she was okay and the doctors were giving her antibiotics. By 8pm, my sister rang me hysterically, saying Mum was put into an induced coma and had been rushed to John Hunter Intensive Care.

I left work in Sydney, to travel the 3 hour drive to be there. Her major organs started failing and I know the doctors tried so very hard to save her, but sepsis was too powerful. My mother was also a breast cancer survivor so the doctors explained part of that meant her body had a weakened immune system which made it harder for her body to fight the sepsis.

It is all a bit of a blur, but by around 4am, the doctors explained that they couldn’t do anything more for her, and that the only thing keeping her alive was the life support, her organs were shut down or shutting down. We were suggested to say goodbye, the doctors saying she would know we were there, for those few moments, when they took her out of the induced coma, to then pass away. It was the hardest, most shocking night of my life.

At 36 weeks pregnant, I needed my Mum then more than ever before. I still miss her everyday but I know she would want me to lead a happy, healthy life. It’s just been very hard to adapt to life without her. She left behind 6 grandchildren, (my siblings’ children) and my then unborn daughter, now 17 months old, named after my mum, Amelia Kathryne. She was a devoted grandmother, even packing my hospital bag to take for when I had my daughter, just two weeks before sepsis took her from us. She will always live on in our hearts and memories.

“I was a healthy 23 year old and then sepsis left me fighting for my life, ventilated and comatose. You never know how strong you really are, until you’re faced with life or death. Sepsis left me with scars of courage and ironically in nearly losing my tongue and my life; I gained a whole new voice and purpose. I am so grateful to the doctors and nurses for my life and it has become my mission to raise awareness about sepsis and make a difference. This is my story of sepsis and my second chance at life.”

Coma to Confidence Courage Cards (coming soon)

Inspirational quotes from survivors around the world to empower you or your loved ones through a difficult time. These cards were put together with love from so many who have been through the most incredible journey including sepsis, cancer battles, loss and have come through the other side to share their message of encouragement. Opening these cards will let you know that you are not alone on this journey. Percentage of profits go toward raising awareness for sepsis and sepsis charities.

My story from sepsis survivor to sepsis advocate…I woke up feeling very unwell and when I got out of bed and put my left leg to the floor I nearly fell over. The pain was excruciating and I could hardly make it to the bathroom. I had a shower thinking that would help but just standing up made the pain in my back and left leg unbearable. I decided to spend the day in bed hoping it was just one of those days, I have rheumatoid arthritis so often get weird pain and feel very unwell, but as the day wore on I realised I was getting worse. My husband duly called an ambulance and they were very concerned and told me that they would take me to the A&E. I was seen fairly quickly, did a urine screen took paracetamol for my pain and the pain eased but I wasn’t putting any weight on my leg. I was told I had a virus and they would call my husband to collect me but he convinced I should be admitted. I felt so unwell I could hardly talk. My husband shortly arrived and as I got into the car he asked me why they didn’t admit me and why didn’t I say something. I told him I felt so ill all I wanted to do was get in to a bed. He wasn’t happy and took me straight to our GP who took one look at me and told me to go straight to another hospital and not wait for an ambulance and there would be a doctor there waiting for me.

I duly arrived at the hospital and was raced off for an MRI of my spine and then seen by two doctors, one of whom is an infection specialist. I don’t remember much of my first week in hospital, I was hallucinating as I saw hundreds of faces on the wall of my room and a nurse would come in and asked me who I was talking to and I remember saying once that it was the Queen. I also remembered much later having a bag of ice put on my head to bring my temperature down. I was in that hospital for nearly four weeks on iv antibiotics through a PICC Line, Cefazolin and Gentamicin and Fentanyl injections for pain. I was told I had Sepsis and an epidural abscess extending from T11 to L4.

During my time in hospital I was visited by three doctors on different occasions who told me that had I got to the hospital 24 hours later I would be dead. A very sobering thought. I left hospital on a dose of five times the normal dose of Keflex daily which I took for 18 months. During that time I saw my infection specialist every week for two months and then monthly for 16 months. During those weeks in hospital I was using a walking frame to get to the bathroom as the pain took about two weeks to subside and I spent most of my time in bed until the last few days.

Once at home I felt quite tired and drained for about six months and had nightmares about getting sepsis again on many occasions. I still have the odd one seven years later. I do get days where I am unable to do much more than sit in a chair and doze. I never know whether that’s caused by the RA or after effects of Sepsis. I am still very wary of getting infections as I am immunosuppressed because of the medications I have to take for my RA. Every time I spike a fever or get a small infection I panic, I never want to feel as bad as I did that month, I really thought I was going to die. It is the second most traumatic thing that has ever happened to me, the first being that my first baby was a full term stillbirth. I remember also feeling really toxic whilst taking Keflex for 18 months. Mixed feelings, one was that I felt relieved that there was probably no chance of getting a blood infection again whilst I was on such a high dose of antibiotics, the other that I did feel vaguely unwell and as though I was being slowly poisoned!

I’m still here, a very active and vocal consumer advocate in the health system, private and public, state, national and internationally. My International committee is the Staphylococcus aureus Network Adaptive Platform trial(SNAP) where I sit as the consumer advisor. I feel very privileged to have won the position and delighted that they take any concerns I have seriously, and that doesn’t always happen as a sepsis survivor and consumer advocate.

My mother was courageous and incredibly positive despite living with rheumatoid arthritis for 56 years. She rarely complained, had a radiant smile and a ready laugh. Her family was everything and she really loved her newest great grandson (pictured).

At 86 years, her heart wasn’t great, and she had a leg ulcer but was still driving herself around and determined to live independently.

In April 2017, Mum had pain from her leg ulcer. I took her to a hospital near our home in a capital city. She was admitted and a specialist changed her pain medication and devised a plan to help her recover.

On Friday, a week or so later, Mum was noticeably subdued when I visited but I thought she was probably still adjusting to her new medication.

On Saturday, my husband and I visited, and she was initially fine. But she became sleepy as the day progressed. This was unusual for Mum. An ‘on call’ Doctor attended, adjusted Mum’s medication and ordered intravenous fluids.

After he left, Mum developed a grey pallor, and as I watched her breathing, I saw her struggle. I found the Doctor who was on his way out of the ward and told him what I’d observed. He told me he’d review Mum and left the ward.

As the day progressed, Mum became delirious and a nurse explained that delirium was common in the elderly and likely to pass.

On Sunday, Mum was sitting up when my husband and I arrived and then dropped off to sleep. I had trouble finding a nurse to explain that Mum was very sleepy and expressed my concerns. She said she would come in later, but no one arrived.

Later, my husband found a nurse. The nurse tried taking observations and told us that the oxygen and blood pressure monitors weren’t working. We told her we’d like the Doctor to reassess Mum. The nurse mumbled something and went away.

By noon, Mum couldn’t wake for lunch. I was getting worried and told a nurse that Mum was unwell and that I wanted to speak to her supervisor. She said, “I report to the Team Leader who doesn’t come in until Monday.” I asked to speak to a Doctor directly. She told me “You have to wait until Monday when the Doctor comes around.” She turned and walked away from me.

By evening, Mum’s delirium had returned and she was ill. She felt cool, looked sick and the nurses were not doing anything to assist.

On Monday, my husband and I decided we’d not leave Mum alone until she’d seen a Doctor and was out of danger. At 9 am she mumbled a few words and fell asleep. As the hours passed, her condition deteriorated with her tongue lolling about in her mouth. I suspected she was unconscious.

My husband and I kept reporting Mum’s condition to the nurses who appeared rushed, indifferent and kept telling us we had to wait. At 11.50am. a Doctor and Trainee arrived and attempted to elicit a response from Mum to no avail. Naloxone was administered with little response.

It took until 16.00 for Mum to be admitted to the Intensive Care Unit (ICU) and diagnosed with ‘septic shock’, ‘hospital acquired pneumonia’ and ‘acute kidney injury’.

We were told to say goodbye to her twice over the next few days. Mum rallied like a trooper each time. The Hospital told us Mum could ‘go home’. We admitted her to high care in Aged Care in late May and she died in early July. Her death certificate records heart failure and sepsis as causes of death.

Information from three subsequent complaints informed me that junior nurses and doctors were reluctant to disturb senior Doctors on weekends. I have not been informed that this was investigated.

The Coroner had an independent medical expert review my mother’s hospital records. Among his comments are the following:

I write this account of what happened to my mother with the aim of contributing to a better awareness and understanding of sepsis and its signs and symptoms with the hope that it will prevent similar cases in the future.

Lorraine’s kind, strong and amazing mother Lillian died from sepsis on 7 December 2019. Lillians’s memory is kept alive by her compassionate and devoted daughter who strives to raise sepsis awareness.

Lorraine “Two years ago my mum Lillian was diagnosed with Sepsis and rushed to Intensive Care where she was quickly hooked up to numerous drips to help her body function, nurses monitoring and adjusting dosages never leaving her room for hours on end as all her organs were shutting down. She was not expected to survive the night but the doctors did not realise the strength she had and 18 days later she came back home Mum and was lucky to be able to meet her new great grandson and great, great grandson both born a few months later.

Unfortunately the battle with Sepsis was not over and over the following two years Mum endured constant pain and illnesses and sadly passed away on the 7th December last year.

I had no idea what Sepsis is and how catastrophic it can be and the affects it has on patients and their family. It can be triggered by an infected minor cut or scratch or a more serious systemic infection, as with my mum. The body’s response to the infection injures its own tissues and organs. It may lead to shock, multi-organ failure, and death – especially if not recognised early and treated promptly.

Vital funds are needed not only for studies and education but to provide clinical care to patients and I would like to help in a small way. On the first anniversary of mums death on the 7th December to honour the memory of mum a donation will be made to Australian Sepsis Network from her family and friends”.

Thank you Lorraine for your resilliance, strength and generosity. To all of those who have lost loved ones to sepsis our love and thoughts are with you, together we will strive to reduce sepsis in Australia and improve outcomes and quality of life for survivors. ASN

A matter of minutes! On Christmas Day two years ago Mick O’Dowd was feeling unwell. 24 hours later he was battling for his life. The life-affirming story of Mick and Katharine O’Dowd and the silent killer most people have never heard of, sepsis.

Watch this incredible Australian Story of survival, resilience, loving support and recovery from sepsis.

Firstly, I want to thank the doctors and nurses and to highlight that my encounter with sepsis “was a medical mystery” like many others who have suffered sepsis, it can be an elusive disease with devastating consequences.

In 2013, Mandy Mccracken lost her hands and feet to Sepsis at the age of 39. It began with a fever, vomiting and diarrhoea and lead to a ten month long hospital stay. Now with the aid of prosthetic hands and legs, Mandy has returned to driving, gardening, cooking and she has even gone back to occasionally rock climbing. With the help of her husband Rod and their three daughters, Mandy is continuing to live a vibrant and fun filled life.

After meeting other quadruple amputees, Mandy and fellow amputee, Korrin Barrett began the Quad Squad. The worlds only support group for people specifically missing all four limbs, the Quad Squad now has over 230 members and is a place to connect and support one another. Meeting biannually in Australia, Mandy facilitates the Quad Squad Muster, where quadruple amputees share tips and ideas as well as hear from industry experts.

As a regular face in the media and through her blogs, Mandy has shared her story and aims to make disability a regular part of our conversations. She regularly volunteers with prosthetic students and speaks to community and corporate groups about resilience and dealing with change. “Life is one giant social experiment.”

As an 18-year-old Honours Law student, Maddy was intelligent, beautiful, very independent, wickedly funny with sarcastic undertones (sometimes irreverent) and a great lover of all of God’s creatures, in particular dogs. Maddy was larger than life, a high achiever that typically got what she wanted, through sheer dedication and perseverance.

Maddy attended the Queensland Tennis School of Excellence at Kelvin Grove State College, during her high school years. She loved the social side of Tennis and was much loved by her Tennis Fraternity. She fought hard in every game to make sure she won as she was very competitive. After leaving school and whilst attending University, she returned to her love of tennis by coaching young children in the sport at Southern Cross Tennis. This was an extraordinary effort on her part as she was studying a double degree and working as many hours as she could at Grill’d, to earn her own income.

Maddy worked hard, was loved and respected by all those that she worked with, and she enjoyed spending her money on the finer things in life. Maddy was meticulous at looking after herself. She paid attention to her fitness, attended the Gym, spared no expense with her makeup and hair, and it showed. She was a very pretty young lady.

That’s why we are still coming to terms with how, just two weeks shy of her 19th Birthday, Maddy became ill with Influenza, developed pneumonia, and just over one week later, died from Sepsis, in Intensive Care.

Through Maddy’s story, her legacy, she will continue to be an achiever by saving the lives of others. Please educate yourself, your family and friends about Sepsis. Share Maddy’s story. Get the Flu Shot and know the signs of Sepsis. It might not just be the flu. Ask the question ‘Could it be Sepsis?’

Little Mia Wilkinson might only be six, but already her story could span lifetimes. Little Mia is a pocket rocket who, despite her young age, just happens to be one of the gutsiest people you’ll ever meet.

Mia could well have been another casualty of the deadly flu outbreak. This year, the numbers are frightening – it’s not just the sick and elderly, but the young and healthy. Australia is in the midst of the second-deadliest flu season on record. More than 130 thousand cases have already been reported, and there have been more than 230 deaths.

Just a year and a half ago, Mia was a happy, healthy girl, full of beans and just learning how to ride a bike. Then, within hours of coming down with the flu, she was fighting for her life. Her parents, Peter and Amy, were forced to make the most agonising decision: whether to let doctors amputate all four of her limbs.